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Welcome to PHA Australia
INTERNATIONAL PULMONARY HYPERTENSION MONTH
Fom left to right - Annie Whitaker Co-Founder and Joan Godber President manning or womanning the PHAA Stand at the medical scientific meeting Melbourne 2013.- Long day - thanks to Brad & Shayne ( Chicky) Misfud for helping set up and Richard Whitaker for helping to pack up :) we did very well and it was worth it.
Thanks to Bayer and Anna from Bayer for helping us get there and get it together.
AND NOW WE ARE GOING TO........
(More information for registered members is on our Message board in the Off Topic Forum - Blurple-ing for PH)
IF YOUR LOGIN ISN'T WORKING OR YOU CAN'T REMEMBER IT OR YOUR PASSWORD PLEASE CONTACT US DO NOT JOIN AGAIN - CONTACT US VIA firstname.lastname@example.org
We are currently preparing our membership list to transfering it to our new website. Your URGENT attention is required - Please go into your profile and check all your information, in particular your email address. All communication will be via the email address you have submitted on your profile and if it is not up to date you will miss receiving vital information needed to activcate your membership on the new site. This will delay access to the site when we lauch early in the new Year. To find your profile login - it should come up immediately and you should have an edit tab at the top so you can check everything. You can also access your profile bydouble ckicking on the My Account tab on the top banner.
If you have any questions or are having trouble finding your profile please contact email@example.com
PHA Australia is a registered non profit organisation.
Pulmonary Hypertension may be known as:
Pulmonary Hypertension (PH) is the general term there are different forms of Pulmonary Hypertension. Some forms are secondary to other medical conditions.
Pulmonary Arterial Hypertension (PAH), Primary Pulmonary Hypertension (PPH), Idiopathic Pulmonary Arterial Hypertension (IPAH), Associated Pulmonary Hypertension (APAH), Familial Pulmonary Arterial Hypertension (FPAH). Chronic Thromboembolic Pulmonary Hypertension (CTEPH), Portopulmonary Hypertension (POPH).
The mission of Pulmonary Hypertension Australia is to provide hope, support and education, and to promote awareness and to advocate for the pulmonary hypertension community.
PHA Australia is registered non profit organisation, managed by a committee that is elected every Annual General Meeting. This committee is made up of PH patients, family members and friends.
Our main focus for this website is to provide support, create awareness and provide the latest information and research on Pulmonary Hypertension. We do this by offering members a message board for PH information as well as message boards for friendly conversation and fun. The application process although easy to navigate, must meet the approval of our moderators. This restriction keeps our site private and safe for our members. We have two types of membership - PH Members and Clinical Members. The site is partitioned so each section is private to the other. Ph members cannot see or comment in the clinical section and vise versa. Please see the criteria for each of these under the “Join/Donate” tab.
Together we are stronger
Raising awareness about Pulmonary Hypertension. Many people are misdiagnosed, undiagnosed as well as being diagnosed and not directed to the correct treatment for their medical diagnoses of Pulmonary Hypertension. This is not your regular high blood pressure! This high pressure is in the pulmonary artery between your heart and lungs.
Thank you for supporting this website and helping save lives.
Please see the following clip made by a fellow member Sharyn Cody. It tells the story.
PLEASE CHECK OUR NEWS SECTION- a lot of work and research goes into this daily!! - scroll to the bottom left hand corner of the page - it is in the pink section and i try and keep up with the latest info when i can. - Thanks Annie.
IMPORTANT INFORMATION THAT NEEDS YOUR ACTION: Go to the Message Board for the link (if you are not already a member please join, it's free) to notices under Off Topic on Chronic Disease Dental Scheme. Please help everyone by taking the recommended action, every bit helps.
ORGAN DONATION IS ONGOING, PLEASE:
Talk about organ donation to your family and friends so they know what your wishes are, you could end up saving one of our lives as many of our members are transplant candidates. There is no greater gift! For more information go to the Donate Life website www.donatelife.gov.au!
Remember when logging in - to have the .au on the end or your URL to access the message boards. - http://www.phaaustralia.com.au/
To help make the transfer to our new site as smooth as possible, and easier for those doing the transition, could you please do the following:
Please log into the message board and go to the Roll Call posting under Off Topic so you can show that you are an active member. If you are have difficulty logging on please contact Joan at firstname.lastname@example.org or email@example.com for assistance.
Have you changed your email address and forgotten to tell us? Please check that your profile details are up to date particularly your EMAIL ADDRESS. We can't communicate with you if it's not current and we would hate it if you missed out on being transferred.
A FINAL NOTE : MAKE SURE YOU HAVE : http://www.phaaustralia.com.au/ with the "au" if you do not have the "au" on the end of the url address you will be directed to our basic site without the message boards.
PHA Australia brings hope and a better understanding of pulmonary hypertension to many families throughout the Australia and the world.Each year brings advances in PH treatment and more answers.
A fabulous gift at any time would be a donation to our site, so we can continue to work at raising awareness of this disease. You can do this by contacting us at firstname.lastname@example.org - we seem to be having some Paypal issues.
PHA Australia would like to thank PHA USA for their ongoing support:
PHA Australia would like to thank Pfizer for their fabulous support.
PHA Australia is proudly sponsored by
Our Paypal account is inactive, however, you can make donations direct - which are appreciated more than anyone realises due to the isolation of many patients and also the restrictions of having Pulmonary Hypertension - please email admin - for our bank details - every cent counts to keep us online- THANK YOU.